Help Maria Angeles Maria Angeles
is a beautiful girl Zárate of 7 years old who has CHARGE Syndrome, a rare disease affecting his whole little body by you need a special diet and a number of medications whose cost is impossible to meet his family. Like many disabled Angeles
tube misery of being a "beneficiary" the "teacher", Federal Health Program, not in the city, or left to the mercy of God.
A request for help from her mother in FM Rock the case became known and many people of good heart went to work.
Only through the dedication and courage of his family María Angeles continues. 03487-15-589385
Marisa Mom
We can not leave it alone .......
"syndrome is the name given to the group of symptoms characteristic of disease. One of the most complex to diagnose syndromes is CHARGE Syndrome. This syndrome can result in vision loss and hearing. Children who have been diagnosed with CHARGE commonly have:
· coloboma of the eye (a cleft or mutilation defect occurring somewhere in the eye, the iris, retina or disc), and cranial nerve problems (facial palsy and swallowing problems) and cartilage abnormalities,
· problems of the heart,
· atresia choanae (closure of the later passages of the nose to the throat, which are those that allow breathing through the nose),
Delay in growth or development, genital hypoplasia
· (this may include a small penis in boys, undescended, lack of opening the urethra at the tip of the penis, and girls can include the absence or smallness of the labia) and abnormalities in the urinary system,
· Ear abnormalities and hearing loss.
Children with CHARGE require a lot of care. They have to do many surgeries to repair heart defects, choanal atresia, bowel, esophagus, cleft lip or palate, etc. Although many of these procedures are done when the child is a newborn, some life-threatening problems may not appear until later, or may be need to wait until the child grows slightly to addressed.
The result is that families and children going through difficult times, emotionally, physically and economically. It is easy to overlook a spouse (or other children) when parents have many things to attend.
These families need a lot of help finding medical resources, economic and support they need. "
Source: http://www.tsbvi.edu/seehear/winter99/charge-span.htm
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